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Supporting Dementia Self-Advocates, a Directory of Resources, and a short video, The Many Voices of Dementia Advocacy

Supporting Dementia Self-Advocates, a Directory of Resources, and a short video, The Many Voices of Dementia Advocacy
  • Type of resource: Video/Audio
  • Keywords: dementia, self-advocacy, inclusive communities, awareness
  • Languages: English
  • Country: United States of America
  • Region: Region of the Americas (AMR)
  • Publication year: 2019
  • Date submitted: 08/11/2020
  • Average ranking:
The two resources worj together: 1) Supporting Dementia Self-Advocates ‚ a Directory of Resources, which collates relevant online resources to support inclusive working and self-advocacy, and 2) The Many Voices of Dementia Advocacy, a short film with seven people living with dementia in different countries, talking about their experiences of self-advocating, their motivation and top tips. Broad consultation was done to identify the barriers to self-advocacy, which can include: confidence, accessibility, discriminatory language, stigma and lack of engagement from others. The project also identified existing resources to support dementia self-advocates and highlighted some of the gaps that exist.
The two resources collate relevant online resources to support inclusive communities, to empower and inform self-advocacy, and to educate others. Resource themes included:
-Dementia inclusive/ friendly/ accessible events
-Inclusive language
-Engaging and consulting with people with dementia
-Self-advocacy on dementia
-Human rights
-Co-production, access and participation
-Campaigning- strategy and tips
-General self-advocacy
-Safeguarding

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